O cuidado dos cuidadores familiares a criança com diagnóstico de HIV/AIDS

Abstract

After almost 4 decades of the discovery of AIDS, the new face of the disease has been worrying the health services and the public policies of care to the pregnant woman because the children suffer with the vertical transmission of the disease, from this the objective of this study is to apprehend how family members / caregivers provide care for the child with HIV / AIDS diagnosis; to grasp the family dynamics to establish child care and to consider how current professionals and policies enable families to care for children. An integrative review research was carried out with thematic analysis in the LILACS, SCIELO and PUBMED databases with a cut from the years 2004-2018. Regarding the exercise of family dynamics and care, it was identified that the woman is the main caregiver and the difficulties of care are intertwined with fragility in family relationships, financial instability, adherence to ART, overprotection, blame and revelation of the disease. Religiousness is used as an artifact for the daily confrontation of living with HIV / AIDS. There are public policies that guide the work of professionals and reinforce aspects related to ART. Care is permeated by gender issues and social aspects that interfere with the process. In addition, the care of professionals is emphasized with regard to ART. Relationships and the process of caring interactions and actions were little discussed in the studied literature, but faced with the difficulties in the dynamics of care deserve more attention.