Estudo dos aspectos sociais e econômicos das famílias e dos pacientes com malformação congênita do sistema nervoso central

Abstract

This is a qualitative study, prospective longitudinal and intervention which will be evaluated in a number of patients and their families attended the Maternity of UFRJ, under the aspect of social and economic. For data collection we used a semi-structured form, the script development of the form was divided into two parts: the first step to draw the socioeconomic profile of households and the second stage with the issues that address the health factor disease (treatment) related to patients. The objective of the study is to analyze the social and economic conditions of these families. The importance of this topic refers to the seriousness, prevalence, prognosis of the disease, the difficulties in the treatment, rehabilitation and knowledge of the quality of life of these patients in the health / disease. With this work we hope to contribute to a reflection of these little aspects discussed in our professional environment.